JASON, an independent advisory group of scientists, has issued a very interesting and informative report, Data for individual health, with findings and recommendations for a patient-centered Learning Health System in which the focused is on the health of individuals rather than the care of individuals. The report builds upon an earlier 2013 report, A robust health data infrastructure.
“Success would allow the emergence of a Learning Health System able to leverage electronic health records and an entirely new set of health and wellness inputs, from personal health records to environmental data. Such a system would also leverage basic research, clinical practice, public health, and community involvement.” (Conclusions, p. 87)
Individual personal health records (PHR) are essential components of this patient-centered framework, enabling the learning shift in focus from care to wellness.
We see in this report the ideas, findings, and recommendations of the best and brightest scientists as they offer insight and guidance in the evolution of the health information systems in the United States. For anyone interested in health IT and PHR, this report is a worthwhile read.